My friend, Migraine

Living with Migraine: A Tale of Pain, Surprises, and Resilience

As a child, I was always known for my constant smile and happiness. But there was one day when that smile disappeared. The pain was so intense, like a monster scratching deep behind my eyes. I couldn’t even speak, and my vision was clouded by a dark gray aura. My parents rushed me to the hospital, unaware that this would become a regular occurrence in my life. Migraine had made her first appearance, ready to become a recurring character in my story.

Migraine attacks for me always start with an aura. Shadowy spheres cloud my vision, gradually transitioning into excruciating pain throughout my entire body. Nausea hits me like a tidal wave, as Migraine takes over my nervous system. She is a powerful foe with a stubborn determination to do her job.

Over the years, I have tried countless treatments to combat Migraine. Nasal sprays, pills, injections, and even Botox have been part of my arsenal. But each treatment comes with its own side effects and requires careful preparation. If I don’t take medication in time, it’s less effective. To combat this, I now have a specially trained service dog who can alert me to upcoming migraine episodes. Through scent training, he can sense the hormonal changes before a migraine hits, allowing me to take proactive action.

Living an active life with Migraine has been a challenge. I’ve experimented with special diets, essential oils, and dedicated my life to peaceful living. Desperation has led me to explore every recommendation thrown my way. A cab driver insisted that a particular type of music would cure all my ailments, while a customer in Walmart suggested eating a miracle fruit every morning. Another person suggested a fully liquid diet, and a friend shared the benefits of yoga and meditation. I’ve tried them all with varying levels of success.

But I want more. Migraine may be difficult and bothersome, but she’s become a sitcom neighbor who’s here to stay. She demands constant attention and expensive gifts, forcing me to prioritize my well-being. Taking care of Migraine requires me to eat well, stay hydrated, and look after my body. In a strange twist of fate, she has also become an unexpected friend. The need to practice self-care and improve my lifestyle has become an integral part of my relationship with Migraine.

Though Migraine remains a thorn in my side, I have to admit that she has forced me to make positive changes. She has become a catalyst for a healthier and more mindful way of life. I once despised and resented her presence, but now I can’t imagine life without her. Migraine has shaped my journey and taught me resilience, reminding me of the strength I possess to face any challenge that comes my way.

Erica Diebold, a YouTube content creator dedicated to advocating for the disability and service dog communities, shares a similar experience. Erica holds a Bachelor of Arts in Mathematics and underwent open-heart surgery soon after graduation. She is passionate about improving the quality of life for people with chronic migraines, rheumatic heart disease, dysautonomia, and mental health conditions.

Design by Medical News Today; photography courtesy Erica Diebold.