Emphasizing the Mental Effects of Inoperable Lung Cancer
Emphasizing the Mental Effects of Inoperable Lung Cancer
Living with Inoperable Cancer: Finding Hope and Support
By Arif Kamal, MD, Chief Patient Officer for the American Cancer Society, as told to Janie McQueen
A cancer diagnosis is a life-changing event that brings forth a whirlwind of emotions, regardless of the outcome. However, if the diagnosis reveals inoperable cancer, it can feel like you are faced with a ticking clock and an uncertain future. This can lead to a complex emotional journey filled with hope, strength, legacy, and ambiguity. It is not uncommon to feel overwhelmed, especially when navigating this path with limited support.
A study on inoperable lung cancer discovered that one of the major mental struggles patients face is uncertainty. Without a fixed plan or the prospect of surgery, the waiting periods between diagnosis, treatments, and outcomes can become an endless loop of brooding, worrying, and fear, ultimately impacting the quality of life. However, even in the face of inoperable lung cancer, there is room for hope, thanks to newer treatments such as targeted therapies. These therapeutic approaches have emerged as successful alternatives to traditional chemotherapy, offering patients a chance to combat cancer without experiencing its harsh side effects.
To maintain mental well-being when living with inoperable cancer, it is crucial to address the various aspects that can impact your mental health. These can range from anticipatory grief (grieving for the loss before it happens) to adjustment disorder (an unhealthy reaction to a stressful event) and even major depressive disorder (MDD). It is vital to communicate with your clinical team about how you are coping and to establish a support system that meets your needs. Dealing with this diagnosis will inevitably bring forth a mix of emotions, including anxiety, anger, sadness, and hope. These conflicting emotions can be difficult to express to loved ones. It is common to feel guilty about certain things, such as not addressing symptoms earlier, being a burden to those around you, or taking time off from work. However, while these feelings are normal, excessive hopelessness or guilt are not. Dwelling on “if only” thoughts and incessant self-blame can exacerbate your state of mind, indicating the need for professional help.
Finding adequate support is crucial for maintaining emotional well-being while living with cancer. Routine assessments of your emotional health, coping strategies, and resilience should be a priority if you have cancer. Most cancer centers can refer you and your caregiver to psychologists, therapists, or palliative care specialists who can help you navigate your emotions, prescribe medications if necessary, and address other symptoms that may arise due to emotional stress. Contrary to common perception, palliative care is not solely reserved for end-of-life situations like hospice (although palliative care is included in hospice care). Palliative care can be initiated at any time, and starting earlier – even in the weeks following diagnosis – has been shown to improve outcomes.
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Aside from professional support, there are other avenues you can explore to find solace and understanding. Your family, friends, and caregivers can provide much-needed emotional support, so don’t hesitate to accept their offers to help. Lean on them for assistance with tasks that you find draining, both physically and mentally, to give yourself the time and energy needed for healing. Additionally, reaching out to others who are going through a similar journey can be immensely beneficial. Whether it is connecting with individuals in person or online through support or chat groups, the sense of camaraderie can help alleviate feelings of loneliness and boost your hope.
It is essential to change the narrative surrounding cancer to encourage individuals to seek help and support. The prevalent “war” narrative, referring to cancer patients as fighters, warriors, or brave soldiers can be motivating for some, but not for everyone. This militaristic language often downplays the rollercoaster nature of the cancer journey, which is filled with highs, lows, and moments of emotional overwhelm. By normalizing the stress, complexity, and uncertainty associated with cancer, individuals will feel more comfortable reaching out for the support they need.
Living with inoperable cancer is an immensely challenging path, both physically and emotionally. However, there is reason for hope, and there are support systems available to help navigate this journey. Through engaging with healthcare professionals, seeking emotional support from loved ones, and connecting with others who share similar experiences, you can find solace, strength, and a renewed sense of hope. Remember, you are not alone, and together we can redefine the narrative surrounding cancer, fostering a community that supports and uplifts one another.
