Accepting a GA Diagnosis

Accepting a GA Diagnosis

Living a Full Life with Geographic Atrophy (GA)

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Living with geographic atrophy (GA) can be a challenging journey, but it doesn’t mean that life has to be limited or devoid of joy. While GA may have an impact on your vision, it is important to understand that it does not lead to total blindness. With a few adjustments and a positive mindset, you can still engage in activities you love and maintain your independence.

Coping with the Initial Feelings

Being diagnosed with GA can be emotionally overwhelming, and it is entirely normal to experience feelings of sadness and worry. Jill Adelman, a resident of Turnersville, NJ, who has GA and advocates for people with vision loss through the BrightFocus Foundation, initially felt devastated upon receiving her diagnosis. Accepting the reality of vision loss can take time, and Adelman had to navigate through the acceptance process. The biggest challenges for her were accepting the changes caused by vision loss and adapting to them.

It is common for individuals with GA to associate their condition with a loved one who also experienced vision loss. However, it is important to remember that GA does not result in complete vision loss. Many individuals with GA are still able to lead fulfilling lives, albeit with some additional assistance.

Understanding the Facts About GA

If you have GA, you are classified as legally blind, but this doesn’t mean that darkness envelopes your entire world. GA primarily affects central fine detail vision, resulting in blind spots, reduced sharpness, and less vibrant colors. It may become challenging to see in low light and recognize faces. Activities like driving, reading, and engaging in crafts and hobbies may also become more difficult.

While the vision loss caused by GA is permanent, it primarily affects the central vision and does not impact peripheral vision. As a result, you can still utilize your peripheral vision to navigate and engage in various daily activities. Driving or reading might be compromised, but you can still move around your house, visit malls or restaurants, exercise at health clubs, and actively participate in social activities.

Adapting to Improve Your Life

Living with GA does not mean resigning yourself to a limited existence. There are tools and technologies available to help you stay active and independent. Magnifiers and high-quality lighting can significantly improve your ability to see. Additionally, computers, tablets, and smartphones equipped with voice command features can assist you in navigating your surroundings, identifying objects, and completing everyday tasks.

Jill Adelman, for instance, has made several modifications in her home and daily life to accommodate her vision loss. Special lighting, magnifying glasses, flashlights, and electronic devices with large fonts and high contrast have become integral parts of her routine. For those who enjoy reading, electronic magnifiers, large-print books, and audiobooks offer accessible alternatives. Similarly, individuals who enjoy cooking can adopt simple changes such as using light- or dark-colored cutting boards for better contrast and applying bright tape to measuring cups to ensure safety and independence in the kitchen.

Reasons for Optimism

Living with GA means having access to various devices that can significantly improve daily life. Moreover, experts believe that further advancements and solutions for GA are on the horizon. Given the prevalence of GA affecting millions of people worldwide, numerous organizations are investing resources in research, pursuing pharmaceutical therapies, and developing innovative technologies to address magnification needs.

According to Dr. Matt Starr from the Mayo Clinic, research in this area is particularly intense, inspiring optimism for the future. With continuous efforts to find effective treatments and rapidly evolving medical devices, the prospects for individuals with GA are brightening.

Resources to Support Your Journey

While waiting for further advancements in GA management, several resources are available to help you navigate this journey:

  • Retina and Low-Vision Specialists: Regular appointments with your retina specialist are crucial to monitor your condition and explore treatments. Low-vision specialists can provide valuable guidance on making the most out of your remaining vision.

  • Low Vision or Visual Rehabilitation Agencies: Nonprofit groups and state government agencies often offer low-vision evaluations, occupational therapy programs, and support groups. Additionally, they may provide aids like electronic devices, lamps, and reading aids to support individuals with low vision.

  • Support Groups: Joining a support group for GA connects you with individuals who understand the challenges you face and can offer emotional support and practical solutions for managing the changes in your life.

  • Your Social Network: Building and maintaining connections with family and friends can mitigate feelings of isolation. Additionally, your support network can assist you with practical tasks such as transportation, cooking, cleaning, and streamlining daily activities to promote independence.

  • Exercise: Engaging in regular physical activity can help manage symptoms of depression and anxiety. Consult with your doctor to develop a fitness routine that suits your needs and abilities.

Living with GA may present challenges, but it does not define your potential for living a vibrant and fulfilling life. With the right mindset and access to resources, you can adapt, thrive, and continue enjoying the activities and experiences that make life meaningful.